News and Events

NICE – Initial Engagement Meeting

Statement from CureME Director and Principal Investigator Dr Luis Nacul, who represented CureME and the LSHTM at yesterday’s National Institute for Health and Care Excellence initial engagement meeting on new guidelines for ME/CFS: “The meeting was positive and NICE seems committed to fully engaging people with ME/CFS among a wide range of stakeholders. There seems to be […]

2017 Christmas Appeal success!

The UK ME/CFS Biobank entered 2018 with a bang! We are delighted to announce that the Christmas Appeal grand total is a whopping £17,910 (with the possibility of a slight increase). These donations will allow us to release more Biobank samples in 2018 and continue our longitudinal study. A major shout out must go to […]

CureME’s annual newsletter 2017

Our 2017 Annual Newsletter with updates on the Biobank and our research can be found here. We wish you all the best for 2018 and look forward to keeping you posted on an exciting year ahead!

Biobank samples received by Dr Karl Morten

The UKMEB is delighted to announce that this week it delivered a batch of samples to Dr Karl Morten PhD, senior researcher and laboratory manager at the Nuffield Department of Obstetrics and Gynaecology, John Radcliffe Hospital, Oxford University. This sample release represents the culmination of a year’s fundraising and planning, began by the ME Association […]

Jennifer Brea’s ‘Unrest’ premieres at the LSHTM

Jennifer Brea was a PhD student at Harvard University when she became suddenly ill with a high fever and became bedridden. She was initially misdiagnosed with conversion disorder, but eventually was identified as having ME/CFS. “I learned that my disease, Myalgic Encephalomyelitis (ME), has been ignored by medicine for decades.” Jennifer created and produced a documentary film of her life […]

Major Announcement – NIH grant renewed

$2.1M INVESTMENT IS UK’S ‘BIGGEST EVER INVESTMENT INTO PHYSICAL CAUSES OF ME/CFS ’ The CureME team at The London School of Hygiene & Tropical Medicine is delighted to announce the award of $2.1m (£1.57m) of grant funding from the United States National Institutes of Health. The grant will fund a longitudinal study that will […]

Farewell to Erinna Bowman

We are sad to announce that Research Fellow Erinna Bowman left the CureME team this August. Erinna joined the CureME team almost six years ago, after completing her Master’s at LSHTM. She was initially the team’s administrator, and during those years was integral to the creation of the UK ME/CFS Biobank and the management of […]

Dr Luis Nacul’s letter to the BMJ on overdiagnosis published

In a letter to the BMJ (British Medical Journal), Nacul, Kingdon and Lacerda from the UK ME/CFS Biobank team discuss the inherent risks of the mislabelling of someone as having a disease they may not have, commenting on an earlier essay by Stacy Carter in which she raises similar concerns. Nacul and colleagues argue that this […]

UK ME/CFS Biobank second-largest in UCL Biobank collections

The CureME team has learned that the UK ME/CFS Biobank sample collection now constitutes the second-largest collection housed at the UCL Biobank at the Royal Free Hospital: https://www.ucl.ac.uk/biobank/uclpphysicalbiobank We would like to thank the more than 600 people who have provided the 30,475 samples currently in storage at the UCL Biobank. In effect, each participant […]

EUROMENE: promoting Europe-wide collaboration in ME/CFS

We are delighted to announce a recent publication in the Journal of Translational Medicine, entitled The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE. The paper was co-authored by Eliana Lacerda from the CureME team, together with colleagues from 10 other European countries. https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-017-1263-z The paper discusses the urgent need to promote […]

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