{"id":2445,"date":"2025-01-09T11:06:54","date_gmt":"2025-01-09T11:06:54","guid":{"rendered":"https:\/\/cureme.lshtm.ac.uk\/?page_id=2445"},"modified":"2025-09-29T13:00:48","modified_gmt":"2025-09-29T13:00:48","slug":"me-cfs-events","status":"publish","type":"page","link":"https:\/\/cureme.lshtm.ac.uk\/index.php\/me-cfs-events\/","title":{"rendered":"Events"},"content":{"rendered":"\n<div class=\"wp-block-group alignwide is-nowrap is-layout-flex wp-container-core-group-is-layout-6c531013 wp-block-group-is-layout-flex\">\n<p>The CureME team hosts events on a basis where we share the latest updates from the CureME team, and bring the ME\/CFS community together.<\/p>\n<\/div>\n\n\n\n<div style=\"height:60px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading has-text-align-center\">Past events<\/h3>\n\n\n\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-group is-content-justification-center is-nowrap is-layout-flex wp-container-core-group-is-layout-23441af8 wp-block-group-is-layout-flex\">\n<p>If you weren&#8217;t able to watch one of our events, or want a re-fresher, then don&#8217;t worry. Catch one of our previous events with the recordings below. <\/p>\n\n\n\n<div style=\"height:34px;width:0px\" aria-hidden=\"true\" class=\"wp-block-spacer wp-container-content-6c24486e\"><\/div>\n<\/div>\n\n\n\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-group alignwide has-global-padding is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-group alignwide has-global-padding is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-group alignwide has-global-padding is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-group alignwide has-global-padding is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-media-text alignwide has-media-on-the-right is-stacked-on-mobile is-vertically-aligned-bottom has-custom-d-9-e-1-e-2-background-color has-background\" style=\"grid-template-columns:auto 15%\"><div class=\"wp-block-media-text__content\">\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading has-text-align-center has-custom-41748-d-color has-text-color has-link-color has-medium-font-size wp-elements-31f2ac2a1fa1622f456fedad5a9f1128\"><strong>\u00a0UK ME\/CFS Biobank \u2013 Free\u00a0Sample\u00a0Competition<\/strong><\/h3>\n\n\n\n<p>We are delighted to announce the results of our recent&nbsp;free&nbsp;sample&nbsp;campaign for ME\/CFS research. The campaign offered blood&nbsp;samples and clinical data, donated by people with ME\/CFS and healthy controls, free to researchers with the aim of driving biomedical research into ME\/CFS<\/p>\n\n\n\n<p>Applications were reviewed by a panel including scientists and clinicians outside the CureME team including an early career researcher, and people living with ME\/CFS. Applications were scored individually and then discussed; the studies with the highest average scores were selected to receive&nbsp;samples&nbsp;free&nbsp;of charge.<\/p>\n\n\n\n<p>We would like to thank all applicants for their thoughtful proposals and the participants whose donations made this campaign possible. This initiative has been a valuable step in supporting ME\/CFS research and fostering collaboration between researchers and the patient community.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/cureme.lshtm.ac.uk\/wp-content\/uploads\/2025\/09\/Biobank-map-applications_v01-1024x576.png\" alt=\"\" class=\"wp-image-2770\" srcset=\"https:\/\/cureme.lshtm.ac.uk\/wp-content\/uploads\/2025\/09\/Biobank-map-applications_v01-1024x576.png 1024w, https:\/\/cureme.lshtm.ac.uk\/wp-content\/uploads\/2025\/09\/Biobank-map-applications_v01-300x169.png 300w, https:\/\/cureme.lshtm.ac.uk\/wp-content\/uploads\/2025\/09\/Biobank-map-applications_v01-768x432.png 768w, https:\/\/cureme.lshtm.ac.uk\/wp-content\/uploads\/2025\/09\/Biobank-map-applications_v01-1536x864.png 1536w, https:\/\/cureme.lshtm.ac.uk\/wp-content\/uploads\/2025\/09\/Biobank-map-applications_v01.png 1920w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div style=\"height:28px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n<\/div><figure class=\"wp-block-media-text__media\"><\/figure><\/div>\n\n\n\n<div class=\"wp-block-media-text alignwide has-media-on-the-right is-stacked-on-mobile is-vertically-aligned-bottom has-custom-d-9-e-1-e-2-background-color has-background\" style=\"grid-template-columns:auto 15%\"><div class=\"wp-block-media-text__content\">\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading has-text-align-center has-custom-41748-d-color has-text-color has-link-color has-medium-font-size wp-elements-c9b5cd6c01b93b43b82b14a4dd1a563a\"><strong><strong><strong>Second C<\/strong><\/strong><\/strong><strong style=\"font-weight: bold;\">ureME Webinar: Building Bridges \u2013 Community Strategies and Research Insights for ME\/CFS Study Participants<\/strong><\/h3>\n\n\n\n<p>&nbsp;Our second webinar featured a guest presentation from Dr. Luis Nacul, who is part of the CureME team and currently based in Vancouver. Dr. Nacul provided an overview of his current work in Canada, including a clinical trial of Naltrexone for ME\/CFS that he is supervising, as well as updates from colleagues and developments in other drug trials. The session was highly interactive, with participants sharing questions and reflections that offered valuable insights for researchers. We are deeply grateful to all who attended and contributed to the discussion.<\/p>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<iframe loading=\"lazy\" src=\"https:\/\/lshtm.cloud.panopto.eu\/Panopto\/Pages\/Viewer.aspx?id=fd5593a0-4565-43e0-a62c-b3380095dba4=false&#038;interactivity=all\" height=\"405\" width=\"720\" style=\"border: 1px solid #464646;\" allowfullscreen allow=\"autoplay\" aria-label=\"Panopto Embedded Video Player\" aria-description=\"CureME webinar\" ><\/iframe>\n\n\n\n<iframe loading=\"lazy\" src=\"https:\/\/lshtm.cloud.panopto.eu\/Panopto\/Pages\/Viewer.aspx?id=21917c36-88ed-4102-b3a4-b33e0099487c=false&#038;interactivity=all\" height=\"405\" width=\"720\" style=\"border: 1px solid #464646;\" allowfullscreen allow=\"autoplay\" aria-label=\"Panopto Embedded Video Player\" aria-description=\"CureME webinar\" ><\/iframe>\n\n\n\n<div style=\"height:28px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n<\/div><figure class=\"wp-block-media-text__media\"><\/figure><\/div>\n\n\n\n<div class=\"wp-block-media-text alignwide has-media-on-the-right is-stacked-on-mobile is-vertically-aligned-bottom has-custom-d-9-e-1-e-2-background-color has-background\" style=\"grid-template-columns:auto 15%\"><div class=\"wp-block-media-text__content\">\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading has-text-align-center has-custom-41748-d-color has-text-color has-link-color has-medium-font-size wp-elements-a09163261fe11d53978889e867b7196e\"><strong><strong><strong>CureME Webinar: Building Bridges \u2013 Community Strategies and Research Insights for ME\/CFS Study Participants<\/strong><\/strong><\/strong><\/h3>\n\n\n\n<p>Our interactive workshop, held in February 2025, included a guest presentation from Dr Jaqueline Cliff (Brunel University) with a layman presentation of Dr Sook\u2019s recent publication \u201cAbnormal T-Cell Activation and Cytotoxic T-Cell Frequency Discriminates Symptom Severity In Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome\u201d. Attendees then had the time share their thoughts on the current state of ME\/CFS research, and their most pressing concerns, with the CureME team to help define their future research priorities.<\/p>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<iframe loading=\"lazy\" src=\"https:\/\/lshtm.cloud.panopto.eu\/Panopto\/Pages\/Embed.aspx?id=f97ad7ee-558b-41f2-8b69-b28f00f1bd0f&#038;autoplay=false&#038;offerviewer=true&#038;showtitle=true&#038;showbrand=true&#038;captions=false&#038;interactivity=all\" height=\"405\" width=\"720\" style=\"border: 1px solid #464646;\" allowfullscreen allow=\"autoplay\" aria-label=\"Panopto Embedded Video Player\" aria-description=\"CureME webinar\" ><\/iframe>\n\n\n\n<div style=\"height:28px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n<\/div><figure class=\"wp-block-media-text__media\"><\/figure><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-group alignwide has-global-padding is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-media-text alignwide has-media-on-the-right is-stacked-on-mobile is-vertically-aligned-bottom has-custom-d-9-e-1-e-2-background-color has-background\" style=\"grid-template-columns:auto 15%\"><div class=\"wp-block-media-text__content\">\n<div style=\"height:34px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading has-text-align-center has-custom-41748-d-color has-text-color has-link-color has-medium-font-size wp-elements-7e6819ca8e76aac36ddbdfd0bde326cb\"><strong><strong>The CureME hybrid event 2024<\/strong><\/strong><\/h3>\n\n\n\n<p>The CureME team hosted a hybrid event to share and discuss their latest research findings. The results of the ongoing longitudinal study were presented, along with updates on current research projects, such as the investigation of HHV6 in relationship with ME\/CFS in collaboration with the laboratory team at Brunel University. Additionally, the team introduced a new partnership with YoungEmerg. The event provided an excellent opportunity for researchers and participants to connect and engage in meaningful discussions.<\/p>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<figure class=\"wp-block-video\"><iframe loading=\"lazy\" src=\"https:\/\/lshtm.cloud.panopto.eu\/Panopto\/Pages\/Embed.aspx?id=0cdc46a0-09cb-42bf-869d-b23d009e910d&#038;autoplay=false&#038;offerviewer=true&#038;showtitle=true&#038;showbrand=true&#038;captions=false&#038;interactivity=all\" height=\"405\" width=\"720\" style=\"border: 1px solid #464646;\" allowfullscreen allow=\"autoplay\" aria-label=\"Panopto Embedded Video Player\" aria-description=\"CureME event 19 September 2024\" ><\/iframe><\/figure>\n\n\n\n<div style=\"height:28px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n<\/div><figure class=\"wp-block-media-text__media\"><\/figure><\/div>\n<\/div>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>The CureME team hosts events on a basis where we share the latest updates from the CureME team, and bring the ME\/CFS community together. Past events If you weren&#8217;t able to watch one of our events, or want a re-fresher, then don&#8217;t worry. Catch one of our previous events with the recordings below. \u00a0UK ME\/CFS [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2445","page","type-page","status-publish","hentry"],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/pages\/2445","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/comments?post=2445"}],"version-history":[{"count":75,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/pages\/2445\/revisions"}],"predecessor-version":[{"id":2772,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/pages\/2445\/revisions\/2772"}],"wp:attachment":[{"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/media?parent=2445"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}