{"id":1040,"date":"2024-07-26T12:38:51","date_gmt":"2024-07-26T12:38:51","guid":{"rendered":"https:\/\/cureme.lshtm.ac.uk\/?p=1040"},"modified":"2024-07-29T13:24:08","modified_gmt":"2024-07-29T13:24:08","slug":"me-awareness-day-2024-global-voice-for-me","status":"publish","type":"post","link":"https:\/\/cureme.lshtm.ac.uk\/index.php\/2024\/07\/26\/me-awareness-day-2024-global-voice-for-me\/","title":{"rendered":"ME Awareness Day 2024: Global voice for ME"},"content":{"rendered":"\n

This ME Awareness Day, we wanted to highlight the pivotal role of global collaboration in driving ME\/CFS research forward, with a particular focus on the transformative impact of initiatives like the UK ME\/CFS Biobank (UKMEB).\u00a0 Since 2011, the CureME team established the UK ME\/CFS Biobank \u2014 the first ME\/CFS-specific biobank in Europe and one of <\/p>\n\n\n\n

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Since 2011, the CureME team established the UK ME\/CFS Biobank<\/strong> \u2014 the first ME\/CFS-specific biobank in Europe and one of the first in the world. The technical rigour of the UKMEB’s protocols ensures the reliability and validity of the samples, setting a gold standard for biobanking practices worldwide. As such, the UKMEB has served as a model for other biobanks. The biobank has collected over 30,000 aliquots of blood from participants with ME\/CFS and multiple sclerosis, as well as healthy controls. Each of these samples represents the efforts of individuals to undertake a clinical assessment, complete detailed questionnaires, and donate significant amounts of blood for storage and distribution. <\/p>\n\n\n\n

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But where do these samples go? <\/p>\n\n\n\n

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Many UKMEB samples have been used by our team for biomedical research into ME\/CFS immunology,<\/s>\u00a0and virology (including work on NK and T cells and cytokine profiles), resulting in\u00a0a number of peer-reviewed, data-driven publications<\/a>. In addition, thousands of samples have made their way across the globe to eminent ME\/CFS researchers, enhancing the body of knowledge around ME\/CFS.<\/p>\n\n\n\n

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The UKMEB provides human tissue samples to biomedical researchers internationally who are seeking to determine a biomarkers for ME\/CFS. As of May 2024, thousands of samples have been shared with research groups in Australia, Brazil, Canada, Germany, Israel, Spain and the USA. These figures underscore the far-reaching impact of the UKMEB, transcending geographical boundaries and creating a global community of researchers who are determined to improve recognition, diagnosis and treatment of ME\/CFS. <\/p>\n\n\n\n

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Without the participation of people with ME\/CFS, this research would not be possible. Despite the debilitating nature of their condition, hundreds of people with ME\/CFS have taken part in studies and donated samples to the UKMEB . They are the true custodians of this research, making their voices heard across the globe. <\/p>\n","protected":false},"excerpt":{"rendered":"

This ME Awareness Day, we wanted to highlight the pivotal role of global collaboration in driving ME\/CFS research forward, with a particular focus on the transformative impact of initiatives like the UK ME\/CFS Biobank (UKMEB).\u00a0 Since 2011, the CureME team established the UK ME\/CFS Biobank \u2014 the first ME\/CFS-specific biobank in Europe and one of […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[14],"tags":[],"class_list":["post-1040","post","type-post","status-publish","format-standard","hentry","category-news"],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/posts\/1040","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/comments?post=1040"}],"version-history":[{"count":2,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/posts\/1040\/revisions"}],"predecessor-version":[{"id":1052,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/posts\/1040\/revisions\/1052"}],"wp:attachment":[{"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/media?parent=1040"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/categories?post=1040"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cureme.lshtm.ac.uk\/index.php\/wp-json\/wp\/v2\/tags?post=1040"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}