NICE – Initial Engagement Meeting
Statement from CureME Director and Principal Investigator Dr Luis Nacul, who represented CureME and the LSHTM at yesterday’s National Institute for Health and Care Excellence initial engagement meeting on new guidelines for ME/CFS:
“The meeting was positive and NICE seems committed to fully engaging people with ME/CFS among a wide range of stakeholders. There seems to be consensus that the previous guideline should be abandoned, and that the new guidelines should fully consider the growing evidence coming from biomedical research, together with the views of a range of experts in the disease.
It will take time, but the importance of what is happening cannot be underestimated, and I look forward to seeing continuing and effective involvement of people with ME/CFS alongside experienced health professionals and researchers as part of the process.”