Leading research into ME/CFS

Company Name

Publications & Reports

Caroline Kingdon, Adam Lowe, Charles Shepherd and Luis Nacul  What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults Healthcare 202210(12), 2438; https://doi.org/10.3390/healthcare10122438 (registering DOI)

——–

Ji-Sook LeeEliana M LacerdaLuis NaculCaroline C KingdonJasmin NorrisShennae O’BoyleChrissy H RobertsLuigi PallaEleanor M RileyJacqueline M Cliff  Salivary DNA Loads for Human Herpesviruses 6 and 7 Are Correlated With Disease Phenotype in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.  Front Med (Lausanne) 021 Aug 6;8:656692.  doi: 10.3389/fmed.2021.656692. eCollection 2021.

——–

Grabowska, Anna D; Lacerda, Eliana M; Nacul, Luís; Sepúlveda, Nuno; (2020) Review of the Quality Control Checks Performed by Current Genome-Wide and Targeted-Genome Association Studies on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Frontiers in Pediatrics, 8. 293-. ISSN 2296-2360 DOI: https://doi.org/10.3389/fped.2020.00293

——–

Nacul, Luis; O’Boyle, Shennae; Palla, Luigi; Nacul, Flavio E; Mudie, Kathleen; Kingdon, Caroline C; Cliff, Jacqueline M; Clark, Taane G; Dockrell, Hazel M; Lacerda, Eliana M; (2020) How Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Progresses: The Natural History of ME/CFS. Frontiers in neurology, 11. p. 826. ISSN 1664-2295 DOI: https://doi.org/10.3389/fneur.2020.00826

——–

Strand, Elin BNacul, LuisMengshoel, Anne MaritHelland, Ingrid BGrabowski, PatriciaKrumina, AngelikaAlegre-Martin, JoseEfrim-Budisteanu, MagdalenaSekulic, SlobodanPheby, Derek+4 more… (2019) Myalgic encephalomyelitis/chronic fatigue Syndrome (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union. PloS one, 14 (12). e0225995-. ISSN 1932-6203 DOI: https://doi.org/10.1371/journal.pone.0225995

——–

Rodrigues, Lucas Sda Silva Nali, Luiz HLeal, Cibele ODSabino, Ester CLacerda, Eliana MKingdon, Caroline CNacul, LuisRomano, Camila M; (2019) HERV-K and HERV-W transcriptional activity in myalgic encephalomyelitis/chronic fatigue syndrome. Autoimmunity Highlights, 10 (1). 12-. ISSN 2038-0305 DOI: https://doi.org/10.1186/s13317-019-0122-8

——–

Melvin, ALacerda, EDockrell, HMO’Rahilly, SNacul, L; (2019) Circulating levels of GDF15 in patients with myalgic encephalomyelitis/chronic fatigue syndrome. Journal of translational medicine, 17 (1). 409-. ISSN 1479-5876 DOI: https://doi.org/10.1186/s12967-019-02153-6

——–

Lacerda, Eliana MGeraghty, KeithKingdon, Caroline CPalla, LuigiNacul, Luis; (2019) A logistic regression analysis of risk factors in ME/CFS pathogenesis. BMC neurology, 19 (1). 275-. ISSN 1471-2377 DOI: https://doi.org/10.1186/s12883-019-1468-2

——–

Cliff, Jacqueline MKing, Elizabeth CLee, Ji-SookSepúlveda, NunoWolf, Asia-SophiaKingdon, CarolineBowman, ErinnaDockrell, Hazel MNacul, LuisLacerda, Eliana+1 more… (2019) Cellular Immune Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Frontiers in Immunology, 10 (MAR). 796-. DOI: https://doi.org/10.3389/fimmu.2019.00796

——–

Nacul, Luisde Barros, BarbaraKingdon, Caroline CCliff, Jacqueline MClark, Taane GMudie, KathleenDockrell, Hazel MLacerda, Eliana M; (2019) Evidence of Clinical Pathology Abnormalities in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) from an Analytic Cross-Sectional Study. Diagnostics (Basel, Switzerland), 9 (2). p. 41. ISSN 2075-4418 DOI: https://doi.org/10.3390/diagnostics9020041

——–

Lacerda, Eliana M; McDermott, Clare; Kingdon, Caroline C; Butterworth, Jack; Cliff, Jacqueline M; Nacul, Luis; (2019) Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study. Health expectations. ISSN 1369-7625 DOI: https://doi.org/10.1111/hex.12857

——–

Lacerda, Eliana M; Mudie, Kathleen; Kingdon, Caroline C; Butterworth, Jack D; O’Boyle, Shennae; Nacul, Luis; (2018) The UK ME/CFS Biobank: A Disease-Specific Biobank for Advancing Clinical Research Into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Frontiers in Neurology, 9. DOI: https://doi.org/10.3389/fneur.2018.01026

——–

Nacul, Luis Carlos; Mudie, Kathleen; Kingdon, Caroline C; Clark, Taane G; Lacerda, Eliana Mattos; (2018) Hand Grip Strength as a Clinical Biomarker for ME/CFS and Disease Severity. Frontiers in Neurology, 9. DOI: https://doi.org/10.3389/fneur.2018.00992

——–

Estévez-López, F; Castro-Marrero, J; Wang, X; Bakken, IJ; Ivanovs, A; Nacul, LSepúlveda, N; Strand, EB; Pheby, D; Alegre, J; +8 more… (2018) Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe-the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review. BMJ open, 8 (9). e020817. ISSN 2044-6055 DOI: https://doi.org/10.1136/bmjopen-2017-020817

——–

Kingdon, CCBowman, EWCurran, HNacul, LLacerda, EM; (2018) Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls. PharmacoEconomics open. ISSN 2509-4262 DOI: 10.1007/s41669-018-0071-6

——–

Lacerda, EMKingdon, CCBowman, EWNacul, L; (2017) Using a participatory approach to develop and implement the UK ME/CFS Biobank. Fatigue, 6 (1). pp. 1-4. ISSN 2164-1846 DOI: https://doi.org/10.1080/21641846.2018.1396021

——–

Scheibenbogen, C; Freitag, H; Blanco, J; Capelli, E; Lacerda, E; Authier, J; Meeus, M; Castro Marrero, J; Nora-Krukle, Z; Oltra, E; +4 more… (2017) The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE. J Transl Med, 15 (1). p. 162. ISSN 1479-5876 DOI: 10.1186/s12967-017-1263-z

——–

Lacerda, EM; Bowman, EW; Cliff, JM; Kingdon, CC; King, EC; Lee, JS; Clark, TG; Dockrell, HM; Riley, EM; Curran, H; +1 more… (2017) The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis. Open J Bioresour, 4. ISSN 2056-5542 DOI: 10.5334/ojb.28

——–

Jain, V; Arunkumar, A; Kingdon, C; Lacerda, E; Nacul, L; (2017) Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS. BMC Neurol, 17 (1). p. 117. ISSN 1471-2377 DOI: 10.1186/s12883-017-0896-0

——–

Nacul, L; Kingdon, CC; Bowman, EW; Curran, H; Lacerda, EM; (2017) Differing case definitions point to the need for an accurate diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome. Fatigue-Biomedicine Health and Behavior, 5 (1). pp. 1-4. DOI: 10.1080/21641846.2017.1273863

——–

Nacul, L; Lacerda, EM; Kingdon, CC; Curran, H; Bowman, EW; (2017) How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies? Journal of health psychology. p. 1359105317695803. ISSN 1359-1053 DOI: 10.1177/1359105317695803

——–

Nacul, L; O’Donovan, DG; Lacerda, EM; Gveric, D; Goldring, K; Hall, A; Bowman, E; Pheby, D; (2014) Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: a proposed protocol. BMC Res Notes, 7 (1). p. 370. ISSN 1756-0500 DOI: 10.1186/1756-0500-7-370

——–

de Carvalho Leite, JC; de L Drachler, M; Killett, A; Kale, S; Nacul, L; McArthur, M; Hong, CS; O’Driscoll, L; Pheby, D; Campion, P; +2 more… (2011) Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis. Int J Equity Health, 10 (1). p. 46. ISSN 1475-9276 DOI: 10.1186/1475-9276-10-46

——–

Nacul, LC; Lacerda, EM; Pheby, D; Campion, P; Molokhia, M; Fayyaz, S; Leite, JC; Poland, F; Howe, A; Drachler, ML; (2011) Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Med, 9. p. 91. ISSN 1741-7015 DOI: 10.1186/1741-7015-9-91

——–

Pheby, D; Lacerda, E; Nacul, L; Drachler, MdeL; Campion, P; Howe, A; Poland, F; Curran, M; Featherstone, V; Fayyaz, S; +2 more… (2011) A Disease Register for ME/CFS: Report of a Pilot Study. BMC Res Notes, 4. p. 139. ISSN 1756-0500 DOI: 10.1186/1756-0500-4-139

——–

Nacul, LC; Lacerda, EM; Campion, P; Pheby, D; Drachler, MdeL; Leite, JC; Poland, F; Howe, A; Fayyaz, S; Molokhia, M; (2011) The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers. BMC Public Health, 11. p. 402. ISSN 1471-2458 DOI: 10.1186/1471-2458-11-402

——–

Lacerda, EM; Nacul, L; Pheby, D; Shepherd, C; Spencer, P; (2010) Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS. Journal of clinical pathology. ISSN 0021-9746 DOI: 10.1136/jcp.2010.082032

——–

Horton, SMC; Poland, F; Kale, S; Drachler, MD; Leite, JCD; McArthur, MA; Campion, PD; Pheby, D; Nacul, L; (2010) Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adults: a qualitative study of perspectives from professional practice. BMC Family Practice, 11. ISSN 1471-2296 DOI: 10.1186/1471-2296-11-89

——–

Drachler, MD; Leite, JCD; Hooper, L; Hong, CS; Pheby, D; Nacul, L; Lacerda, E; Campion, P; Killett, A; McArthur, M; +1 more… (2009) The expressed needs of people with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A systematic review. BMC Public Health, 9. ISSN 1471-2458 DOI: 10.1186/1471-2458-9-458

——–