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Cutting-Edge Blood Test Offers Hope for ME/CFS Diagnosis and Understanding

Individuals living with ME/CFS often face years of uncertainty due to a lack of reliable diagnostic tools. Up to 91 percent of ME/CFS cases go undiagnosed, leaving sufferers without proper medical support for a condition that severely impacts their lives. However, a study published in Advanced Science, with CureME co-authors Eliana Lacerda and Caroline Kingdon, […]

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IACFS/ME Conference 2023

Caroline Kingdon represented the CureME team at the recent IACFS/ME Conference on Long Island in New York, where she presented a poster entitled: Proposed standardised disease criteria to facilitate ME/CFS research in adult populations The team hopes it will contribute to building consensus around diagnostic criteria, creating a more comprehensive understanding of this disease – […]

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Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients

Link to the paper: Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients – ScienceDirect Are you surprised by the results? Certainly, we are (positively) surprised by these findings (Bertinat et al., 2022). This study represents one step forward because it is in line with our previous one, which addressed endothelial dysfunction-related […]

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Current research project: update from Caroline on completion of participant visits

Last week I made the final visits to participants with ME/CFS, these were the last people I will see for the current RO1 grant and I was visiting for the fifth time. As you can see from the photo, all assessments had to be made in a COVID-secure manner, sometimes seeing participants in the garden […]

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‘Long COVID – we’ve been here before’

We strongly endorse a new article published by the BMA that draws attention to people with long COVID who are experiencing issues with disbelief and stigma similar to those that people with ME/CFS have endured over decades: https://www.bma.org.uk/news-and-opinion/long-covid-we-ve-been-here-before Nina Muirhead is a respected surgeon with ME/CFS with whom we have collaborated closely, and Charles Shepherd, of […]

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Farewell to Shennae

It is bittersweet to announce that our Research Assistant, Shennae O’Boyle, has departed from the CureME team to work in vaccine surveillance for Public Health England. Shennae has been a wonderfully hard working and valuable member of our team, and we know that you will share our pride for her as she furthers her career. […]

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Preprint manuscript from the CureME team:

“Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome” https://www.medrxiv.org/content/10.1101/2021.01.06.20248486v1

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”Long Covid’ is anything but a mild illness’

Very interesting article from Joanna Herman who is a consultant in infectious diseases in London. https://protect-eu.mimecast.com/s/C4RICmy54u5n4V6tGh2uV?domain=theguardian.com

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CureME Christmas Appeal

CureME is at the forefront of participatory epidemiological, clinical and laboratory research into ME/CFS in the UK.  At this time, we are particularly keen to look at the biological effects of Long Covid and any similarities to ME/CFS, with the hope of discovering more about ME/CFS disease mechanisms to improve its diagnosis and treatment. We […]

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Living in Lockdown with M.E.

I’ve been housebound and living in ‘lockdown’ due to severe M.E for twenty eight years. My illness keeps me very housebound at all times. I’m still not well enough to get out and take a stroll, and my mobility is still very poor. I’m also just not well enough to socialise or to get and […]

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