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Leading research into ME/CFS
Have you donated to the UK ME/CFS Biobank or participated in a CureME study? We recognise the crucial role of personal narratives in driving urgent biomedical research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Your experiences matter. If you’ve contributed to the UK ME/CFS Biobank or participated in CureME studies, we want to hear from you. […]
Read moreIn 2019, a study conducted by Ron Davis and Rahim Esfandyarpour demonstrated promising results: a technology capable of accurately distinguishing ME/CFS patients from healthy individuals with unprecedented precision. Based on this pioneering work, ME Research UK and the ME Association have jointly funded a new 12-month study. Led by Professor Robert Dorey, Dr. Fatima Labeed, […]
Read moreWe’ve received an amazing response to our call for healthy control participants. While we evaluate how many potential participants currently meet the study criteria, we have paused recruitment. Sign up to our newsletter to be the first to know when we reopen for applications. Are you interested in contributing to ME/CFS research and making a […]
Read moreThis September, the CureME team launched a new study designed to explore the association and temporal relationship between Human Herpesvirus 6 (HHV-6) DNA concentration and the severity of ME/CFS. Herpesviruses have been of interest in ME/CFS research due to their potential to affect the immune system and overall health. Ella Abken, research assistant working […]
Read moreIndividuals living with ME/CFS often face years of uncertainty due to a lack of reliable diagnostic tools. Up to 91 percent of ME/CFS cases go undiagnosed, leaving sufferers without proper medical support for a condition that severely impacts their lives. However, a study published in Advanced Science, with CureME co-authors Eliana Lacerda and Caroline Kingdon, […]
Read moreCaroline Kingdon represented the CureME team at the recent IACFS/ME Conference on Long Island in New York, where she presented a poster entitled: Proposed standardised disease criteria to facilitate ME/CFS research in adult populations The team hopes it will contribute to building consensus around diagnostic criteria, creating a more comprehensive understanding of this disease – […]
Read moreLink to the paper: Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients – ScienceDirect Are you surprised by the results? Certainly, we are (positively) surprised by these findings (Bertinat et al., 2022). This study represents one step forward because it is in line with our previous one, which addressed endothelial dysfunction-related […]
Read moreLast week I made the final visits to participants with ME/CFS, these were the last people I will see for the current RO1 grant and I was visiting for the fifth time. As you can see from the photo, all assessments had to be made in a COVID-secure manner, sometimes seeing participants in the garden […]
Read moreWe strongly endorse a new article published by the BMA that draws attention to people with long COVID who are experiencing issues with disbelief and stigma similar to those that people with ME/CFS have endured over decades: https://www.bma.org.uk/news-and-opinion/long-covid-we-ve-been-here-before Nina Muirhead is a respected surgeon with ME/CFS with whom we have collaborated closely, and Charles Shepherd, of […]
Read moreIt is bittersweet to announce that our Research Assistant, Shennae O’Boyle, has departed from the CureME team to work in vaccine surveillance for Public Health England. Shennae has been a wonderfully hard working and valuable member of our team, and we know that you will share our pride for her as she furthers her career. […]
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