Leading research into ME/CFS

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Publications & Reports


Estévez-López, F; Castro-Marrero, J; Wang, X; Bakken, IJ; Ivanovs, A; Nacul, LSepúlveda, N; Strand, EB; Pheby, D; Alegre, J; +8 more… (2018) Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe-the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review. BMJ open, 8 (9). e020817. ISSN 2044-6055 DOI: https://doi.org/10.1136/bmjopen-2017-020817


Kingdon, CCBowman, EWCurran, HNacul, LLacerda, EM; (2018) Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls. PharmacoEconomics open. ISSN 2509-4262 DOI: 10.1007/s41669-018-0071-6


Lacerda, EMKingdon, CCBowman, EWNacul, L; (2017) Using a participatory approach to develop and implement the UK ME/CFS Biobank. Fatigue, 6 (1). pp. 1-4. ISSN 2164-1846 DOI: https://doi.org/10.1080/21641846.2018.1396021 Full text not available from this repository.


Scheibenbogen, C; Freitag, H; Blanco, J; Capelli, E; Lacerda, E; Authier, J; Meeus, M; Castro Marrero, J; Nora-Krukle, Z; Oltra, E; +4 more… (2017) The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE. J Transl Med, 15 (1). p. 162. ISSN 1479-5876 DOI: 10.1186/s12967-017-1263-z


Lacerda, EM; Bowman, EW; Cliff, JM; Kingdon, CC; King, EC; Lee, JS; Clark, TG; Dockrell, HM; Riley, EM; Curran, H; +1 more… (2017) The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis. Open J Bioresour, 4. ISSN 2056-5542 DOI: 10.5334/ojb.28


Jain, V; Arunkumar, A; Kingdon, C; Lacerda, E; Nacul, L; (2017) Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS. BMC Neurol, 17 (1). p. 117. ISSN 1471-2377 DOI: 10.1186/s12883-017-0896-0


Nacul, L; Kingdon, CC; Bowman, EW; Curran, H; Lacerda, EM; (2017) Differing case definitions point to the need for an accurate diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome. Fatigue-Biomedicine Health and Behavior, 5 (1). pp. 1-4. DOI: 10.1080/21641846.2017.1273863 Full text not available from this repository.


Nacul, L; Lacerda, EM; Kingdon, CC; Curran, H; Bowman, EW; (2017) How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies? Journal of health psychology. p. 1359105317695803. ISSN 1359-1053 DOI: 10.1177/1359105317695803


Nacul, L; O’Donovan, DG; Lacerda, EM; Gveric, D; Goldring, K; Hall, A; Bowman, E; Pheby, D; (2014) Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: a proposed protocol. BMC Res Notes, 7 (1). p. 370. ISSN 1756-0500 DOI: 10.1186/1756-0500-7-370


de Carvalho Leite, JC; de L Drachler, M; Killett, A; Kale, S; Nacul, L; McArthur, M; Hong, CS; O’Driscoll, L; Pheby, D; Campion, P; +2 more… (2011) Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis. Int J Equity Health, 10 (1). p. 46. ISSN 1475-9276 DOI: 10.1186/1475-9276-10-46


Nacul, LC; Lacerda, EM; Pheby, D; Campion, P; Molokhia, M; Fayyaz, S; Leite, JC; Poland, F; Howe, A; Drachler, ML; (2011) Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Med, 9. p. 91. ISSN 1741-7015 DOI: 10.1186/1741-7015-9-91


Pheby, D; Lacerda, E; Nacul, L; Drachler, MdeL; Campion, P; Howe, A; Poland, F; Curran, M; Featherstone, V; Fayyaz, S; +2 more… (2011) A Disease Register for ME/CFS: Report of a Pilot Study. BMC Res Notes, 4. p. 139. ISSN 1756-0500 DOI: 10.1186/1756-0500-4-139


Nacul, LC; Lacerda, EM; Campion, P; Pheby, D; Drachler, MdeL; Leite, JC; Poland, F; Howe, A; Fayyaz, S; Molokhia, M; (2011) The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers. BMC Public Health, 11. p. 402. ISSN 1471-2458 DOI: 10.1186/1471-2458-11-402


Lacerda, EM; Nacul, L; Pheby, D; Shepherd, C; Spencer, P; (2010) Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS. Journal of clinical pathology. ISSN 0021-9746 DOI: 10.1136/jcp.2010.082032 Full text not available from this repository.


Horton, SMC; Poland, F; Kale, S; Drachler, MD; Leite, JCD; McArthur, MA; Campion, PD; Pheby, D; Nacul, L; (2010) Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adults: a qualitative study of perspectives from professional practice. BMC Family Practice, 11. ISSN 1471-2296 DOI: 10.1186/1471-2296-11-89


Drachler, MD; Leite, JCD; Hooper, L; Hong, CS; Pheby, D; Nacul, L; Lacerda, E; Campion, P; Killett, A; McArthur, M; +1 more… (2009) The expressed needs of people with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A systematic review. BMC Public Health, 9. ISSN 1471-2458 DOI: 10.1186/1471-2458-9-458