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I’m 31 and was diagnosed with ME in March 2018, but had actually been ill for three years before that: putting it down to a busy work life, parents being ill, moving house, renovating the house, holidays and work-based learning all going on at the same time. This is the first time during my illness that I […]
Read moreThe CureME team has now been away from the office for eight weeks, but our work has continued during that period. Lab work has stopped (though that will resume next week, in line with new Government regulations) and visits to participants are paused, but the rest of our work has continued. One element of that […]
Read moreOne of the difficulties in suffering from ME is that it is hard to know when you are suffering from a flare-up in symptoms or when you have actually caught a virus, since some of the distinguishing features of coronaviruses, especially influenza, are akin to cardinal ME symptoms. Therefore, when I first started suffering from […]
Read moreThe European ME Coalition is a newly formed advocacy group for persons suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrom (ME/CFS) in Europe. Their team consists of ME/CFS patients and carers who strive for high-quality scientific research so that one day an effective treatment for this debilitating illness can be found. Check out their website: http://europeanmecoalition.wordpress.com/
Read moreThe CureME team at the London School of Hygiene & Tropical Medicine is excited to announce that it is collaborating with the UK CFS/ME Research Collaborative (CMRC), to submit a research proposal on ME/CFS to the Medical Research Council (MRC) and the National Institute for Health Research (NIHR). The CureME team is a critical partner in this […]
Read moreThe CureME team is delighted to share the news that our Principal Investigator Dr Luis Nacul has been appointed as Medical Director of the Complex Chronic Diseases Program at British Columbia Women’s Hospital in Vancouver, Canada. This appointment is the result of close collaboration with colleagues in Canada, and comes after Luis’s term as International […]
Read moreWe are delighted to announce the publication of our new paper, “Cellular immune function in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).” This publication captures many results from Phase 1 of our NIH R01 study, with analysis conducted on samples collected in 2013-2017. Immunology and virology continues in our renewal award, with -omics work nearing publication. The […]
Read moreThe CureME team at the London School of Hygiene & Tropical Medicine (LSHTM) is thrilled to have received an Honourable Mention for Biobank of the Year 2018, presented on Tuesday 27th November at the UK Biobanking Showcase in London. The Showcase is run each year by the UKCRC Tissue Directory and Coordination Centre, and comprised […]
Read moreThree members of the CureME Team presented at the UK CFS/ME Research Collaborative Conference in Bristol last week. It was an excellent event, with many important presentations given. We were delighted that our presentations were well-received, and that researchers in the field were keen to hear about our participant networks and biorepository infrastructure, in […]
Read moreIn November 2017 – January 2018, the UK ME/CFS Biobank (UKMEB) raised around £17,000 from a crowdfunding campaign. The campaign was conducted with the assistance of partner organisations and charities. We have decided to use these funds to release samples and data from the UKMEB free of charge to selected researchers. We want to enable […]
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